Mohit Arora

The decisions that shape health care in Canada were not made by the people who depend on it most. That isn’t an accusation — it’s a design condition. What gets measured, what counts as an outcome, who has standing to name harm when it happens: those choices were made before most patients arrived in the room, and the rooms were arranged accordingly.

I’ve been navigating Canada’s healthcare system as a long-term patient. The work I do now is a direct extension of that: I want the people most affected by health systems to have real authority in shaping them — not just a seat at a table that was set without them.

I’m Board Chair at the Toronto Western Family Health Team, a board member at Liver Canada, and on the Scientific Advisory Board at EqHS. I’m a patient partner at University Health Network on data governance and the UHN website redesign, and a member of AFHTO’s Leadership Advisory Council.

Twenty years in brand strategy — running Full Culture, working with organizations navigating cultural change — taught me that the gap between what an institution says it values and what it actually does is always visible, once you know how to read it. In healthcare, that gap has consequences.

I write about AI in Canadian healthcare, patient data rights, health equity, and what it looks like when lived experience is treated as expertise rather than testimony. If you want to connect, reach me on LinkedIn or at [email protected].